21 and Older (For the Caregiver)

Summary Checklist

The following is a brief checklist of things to help you get started. This checklist is meant to serve as a guide only and is not exhaustive of all services and supports you should explore for your child or family member.

Print this checklist

Health and Medical Care, and Related Therapeutic Interventions

  • Understand the definitions for Autism Spectrum Disorders (ASD), and why a person should be diagnosed.
  • Learn about treatment options and therapies
  • Apply to the Developmental Disabilities Administration (DDA)
  • Investigate Behavioral Support Services if you need them
  • Schedule regular re-evaluations and medical follow-up to measure progress and identify challenges
  • Develop a system to organize your paperwork
  • Develop a good group of providers and supports that will continue to work with your family on a long term basis

Assistive Technology

  • Learn all you can about Assistive Technology services available
  • Explore financial assistance for Assistive Technology

Employment

  • Develop employment experiences, either paid or volunteer
  • Develop a resume that may include a list of skills and competencies as well as a video portfolio showing him/her at work
  • Explore employment services and opportunities available in Maryland
  • Evaluate interests and strengths - vocational assessments
  • Make a decision about disclosure (of diagnosis)
  • Learn about 504 Plans

Housing

  • Explore housing options (residential, community supports, rental options, home ownership)
  • Apply to the Developmental Disabilities Administration (DDA)
  • Apply to the local public housing authority Section 8 waiting list
  • Establish credit and continue to monitor credit reports

Social and Relationships

  • Help your family member learn about appropriate social skills
  • Teach your family member about sexuality and relationships
  • Develop the recreational and leisure activities that your family member enjoys

Funding for Services and Legal Issues

  • Review the “Financial Things Every Parent of a Child with Autism Needs to Know”
  • Apply for Social Security Benefits
  • Apply to the Developmental Disabilities Administration (DDA)
  • Investigate Low Intensity Support Services (LISS)
  • Learn about life planning tools and options
  • Develop a system to organize financial and legal records

Support: Support Groups and Respite

  • Network with others at a support group
  • Investigate support groups for your family member
  • Identify needs of support and establish a support system
  • Take care of yourself, your spouse, your other children
  • Investigate respite care options

Transportation

  • Explore options including public transportation, Mobility, and driver’s license
  • Apply for all appropriate transportation programs
  • Help your family member obtain a Maryland State ID card issued by the Motor Vehicle Administration

Advocacy and Self-Advocacy

  • Make a decision about disclosure (of diagnosis)
  • Learn about becoming an advocate at the local and national level. Consider joining local and national autism groups and listservs.
  • Help your family member learn self-advocacy skills

Back to top